* I started writing Friday morning. Finished today, Sunday morning. Don't judge!
Good Friday morning. Heh. I'm trying to figure out where did the week go. Somehow I'm stuck on Thursday, even though I've been to my Friday deep water fitness class. And by the way, the instructor took great glee in kicking the collective asses of the class! I've digressed....but...the instructor is part of my health care team. Huh. I'm having trouble typing and keep getting crew, instead of team. I like the term crew. My health care crew it is!!
Let's start. When I first started dialysis in November 2012. Yes, it's been that long. I had dialysis techs, a social worker (team), a dietician, a team of nurses and a nephrologist. I learned to understand the role of each and it worked out well. I've kept in touch with one of the social workers since I've left the state. And she is sorority sister. I'm also in touch with one of the nurses, since I've left the state. She is the sorority sister of one my buddies from high school. Small world, eh? These 2 women set the standard of what I would expect when I moved to Las Vegas.
A quick statement on the team when I moved to Las Vegas. Culture shock. Social worker was instrumental in helping me with health insurance and getting me signed up for home hemodialysis. Dietician helped with some meds, but she left within a month of me starting. Huge turnover in staff and the number of staff paled in comparison to the staff in Detroit. Nurses were cool. My assigned nephrologist was a prick. The charge nurse was a bitch. And I stood my ground. Lol mi was the person who had troublemaker tendencies. Eh. I stand up for myself. I started home hemodialysis training just before things went bad. Lol. I wasn't taking any shit. My Detroit staff made sure I had high expectations. There was a tendency to treat dialysis patients poorly. No respect. None. So anyway I was out of there.
Which leads me to my current crew. I have 2(!) nurses, a social worker, a dietician, a nephrologist, and a case worker from my insurance company(!). I meet with them monthly. I also have the primary care physician, a vascular surgeon, a cardiologist and an endocrinologist. That's a lot of people! And I've included my trainer in the mix. It's important that they all keep in sync regarding my health. Of course there are hiccups. And the primary care physician is the most worrisome...he attempts to second guess the specialists (eye roll).
My crew is incredibly supportive. I listen to them. And this is the important part...they listen to me!! I've been reading about dialysis patients that have an assortment of issues with the technicians, the nephrologists, their primary care physician, nurses, etc. I can't begin to understand why. But here is my takeaway. When it comes to your health, be informed, stay informed and be an active participant in your health care. It truly could be a matter of life or death. Feel free to question any member of your health care team. You know you and your body better than anyone. My crew works with me, each and every one. And I appreciate them so much. And it makes living with End Stage Renal Disease a bit more palatable. I do have some control over my treatment...and my life.
That's it for today. Checking out the weather in Michigan, I'm not missing winter. Glen is doing well. More on him later. Have a great day!!